Rare As One Wiki Scholars

These days we know that Wikipedia is a go-to source for info on rare diseases. It’s even more powerful when it is kept up-to-date for our patient communities that search the internet! By updating Wikipedia with the latest research and knowledge, we can help patients and families get the accurate info they need and direct people to our individual organizations for more detailed information. We have contracted with Wiki Education to develop a course just for the Rare As One Network!

For your convenience, we are offering two date options. You can choose either date (both if there is no preference). Grantee organizations are allowed to select 2 people to participate. In order to maximize the opportunity and develop skills that will benefit the organizations long-term, we ask that you select*:

Participant 1: A core member of the organization that will remain with the foundation long term (e.g. Founder, President, Executive Director) and
Participant 2: A person highly involved in a research/science role (e.g. Research Director, Research Coordinator). If you do not have an internal science role filled, you may select a core partner from your research network that has the capacity to attend all sessions

*It is expected that both attend all or nearly all of the sessions (8) in their selected course.

Please note that each session allows for 20 individuals and will be assigned on a first come – first serve basis. You do not need to attend the same session as the other participant from your organization, however it is highly recommended.