Wikipedia is a go-to source for so many things, including rare diseases. It’s even more powerful when it is kept up-to-date for our patient communities that search the internet! Share your expertise on these Wikipedia pages so we can help patients and families get the accurate info they need and direct people to our individual organizations for more detailed information. We have contracted with Wiki Education to develop a course just for the Rare As One Network!
We will be running this course on Thursdays at 10am PT/1pm ET from October 2nd-Nov 20th. Please click the Learn more and Apply button below fill out a brief application.
*It is expected that both attend all or nearly all of the sessions (8) in their selected course.
Please note that each session allows for 20 individuals and will be assigned on a first come – first serve basis.
Fall 2025
October 2nd-November 20th, 2025
Thursdays at 10am Pacific/1pm Eastern
Learn More and Apply
Meet Fridays: 8 live sessions with our Wikipedia experts and a focused group of 10-20 other passionate participants
3 hours per week of light reading, researching your chosen individual and writing directly on Wikipedia
Access a collaborative community of Wikipedia experts and professional peers
Amplify your knowledge/expertise from your laptop, reaching an audience of millions
Weeks 1-2: Introductions
Participants will get to know each other and learn about the importance of covering rare diseases on Wikipedia.
Weeks 3-7: Drafting
We will focus on looking and digging into sources and help ensure that participants can access the literature. Participants will analyze the coverage of rare diseases on Wikipedia to help integrate their new articles with what exists across various language Wikipedias. We will discuss general outlines for what these articles should look like.
Week 8: Completing and polishing
In the final week, we will work on ensuring that all drafts are completed and moved to the main space. We will create categories and navigation templates that will improve discoverability of the new articles. Participants with limited experience in the Did You Know process will be given help nominating their articles if they so desire.
Email scholars@wikiedu.org with questions.
